CCSVI As Cause of MS


Purpose of this website is to explore the hypothesis, and spread awareness on:
CCSVI  - Chronic Cerebro-Spinal Venous Insufficiency

Proposed as the cause of Multiple Sclerosis.

Recent Conferences
  • CCSVI Provider & Patient Information Night Seattle, Jan 28th, 2011
    Entire event video at CCSVISeattle website.
    Live interview with David R. Hubbard, M.D. Founder of the Hubbard Foundation in San Diego, CA.
    Marie Rhodes will present on the research history of 'MS as a Vascular Disease'.
    Presentations by: Eric Feigenbutz, RVT President of Arizona Doppler Specialists, LLC
    and Michael Lavor, M.D., F.A.C.S., Saguaro Surgical in Tucson, Arizona.
    Eric will be performing Zamboni-style CCSVI dopplers periodically in Seattle. For appts: 602.568.5044
    James F. McGuckin Jr., MD of Vascular Access Center in Tukwila, WA.
    And information on CCSVI Alliance, the non-profit formed by MS patients to spur research.
    5:30-8:30pm REI Flagship Store, North Conference Room, 222 Yale Ave N. Seattle, WA 98109
This event organized by the amazing Danielle Rhéaume! Facebook CCSVI Seattle
Refreshments by Pink Door, Cupcake Royale, Sister Souls - Visit them soon!


Ccsvi As the Cause of Multiple Sclerosis: The Science Behind the Controversial Theory
The comprehensive CCSVI reference for practitioners and patients

Pre-order now at Amazon

Marie Rhodes, RN, will be presenting Jan 28th at CCSVI Provider & Patient Information Night
(see details above)

 

Marie, a CCSVI patient herself, is donating 10% of royalties to CCSVI Alliance.

Visit Marie's Website CCSVIbook.com

Printer friendly book info sheet - show to your doctor!


Patient experience: All my central Veins Were blocked. I've had 3 CCSVI procedures. Details in my Treatment Blog and images. More about SammyJo - I just want to help all who have MS.



Ad Click Revenues go to CCSVI Alliance

Latest Developments & Upcoming Events

  Ad Click Revenues go to CCSVI Alliance - Nov $18.81, Dec $10.03, Jan $36.55

Honest Medicine
Honest Medicine:
Effective, Time-Tested, Inexpensive Treatments for Life-Threatening Diseases
 -   - 


Media Coverage

       Note: there is much more news than what I can post. Try google news CCSVI for the latest.

Research / Clinical Evidence / What is CCSVI?

Patient Evidence, Experiences & Support

What The MS Societies & Doctors Are Saying

What Can Patients Do?

  • CCSVI diagnostic and intervention trials are planned. Contact these research centers to get on their list.
  • What you can do to prepare for diagnostics or corrective procedure:
    • Make a transition plan with your doctor if using MS immune suppression therapy, in case CCSVI theory is correct.
    • Find a local vascular doctor or interventional radiologist. Doctor list that treats a similar condition, TOS.
    • You have a right to proper diagnosis, even if treatments are on hold for now. See resources and scan protocols below.
    • Make a post-procedure recovery care plan, based on current level of disability, and a rehab plan to regain functionality.
       
  • What you can do to feel better & slow MS progression while the CCSVI research gets started:
    • Try calming your immune system's reaction to CCSVI damage with Low Dose Naltrexone therapy.
    • Pick your favorite MS diet and stick with it. Quit eating sugar and fructose (Sugar: The Bitter Truth H. Lustig, MD, UCSF).
    • I've tried all of the above and found them to be effective. I've been at this long enough to give advice, so there you have some!
       
  • Action you can take to speed the research
Benefit in San Diego for CCSVI research at Stanford University
WHERE: Sam's Log Cabin Restarant, Albany, CA WHEN: Saturday, August 14  
Another great success, $15,000 raised!

Benefit in Seattle for CCSVI research at University of Buffalo BNAC
WHERE: The Pink Door restaurant WHEN: Sunday, June 27, 2010 5:00pm - 9:00pm   
Click HERE for details and tickets. It was a great success, over $15,000 raised!

 

Where Can You Get the Diagnostic Scans

First contact your MS doctor, and ask when they will begin CCSVI scans.
Have the radiologist coordinate with a doctor familiar with CCSVI, so the right scans are done.
Let the patient coordinator contact your insurance provider for pre-authorization.
Or, if you think you might want to be in a diagnostic or intervention trial, you should sign up now because they fill up fast.

Where Can You Get Diagnostic Scans, & Corrective Procedures

Corrective procedures (angioplasty/stents) as of 2/18/2010 are being performed at a few locations.


More Online Resources & Patient Advocacy Efforts

Facebook
CCSVI in Multiple Sclerosis
CCSVI at UBC MS Clinic - Information and Support
Buffalo CCSVI Study

CCSVI & Multiple Sclerosis - a cure?
CCSVI in MS Toronto
ms-ccsvi-uk
CCSVI & Multiple Sclerosis - a cure?
Sclerosi Multipla trovata la "CURA" dal dott. Paolo Zamboni
Esclerosis Múltiple Venosa (CCSVI)
CCSVI nella Sclerosi Multipla
Sclérose en Plaques Veineuse (CCSVI)
Veneuze Multiple Sclerose (CCSVI)
Venöse Multiple Sklerose, CVI & SVI, CCSVI
MS EMES Multipl Skleroz Türkiye
CCSVI AUSTRALIA
Flowers4MS
CCSVI - MS 33 B.R.A.T.S. (NJ, NY, CT & PA)
CCSVI Worldwide Victory on Facebook & CCSVI Victory Club

You can translate foreign language sites at Google.

Online Patient Forums

CCSVI Locator

Vascular Problems Similar to CCSVI
Doctors in these areas may be able to help CCSVI patients.

American TOS Association Thoracic Outlet Syndrome

Subclavian Artery Thrombosis

   
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The above resources are a starting point for your own investigation. All of these Facebooks, sites & blogs have sprung up just since Sept 2009 when I heard about CCSVI.
Please explore these wonderful sites for the most up to date information, as I am busy with recovery and might miss the latest and greatest CCSVI news!

About SammyJo

I was diagnosed with Multiple Sclerosis in 1995.
I made this website to document my CCSVI recovery, and provide information to others with MS.
More on my MS recovery, starting with LDN in 2004.

 

 

 

 

 

 

 

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