Comments on: About

By: rebecawatson

rebecawatson — Wed, 24 Nov 2010 20:35:15 +0000

I was diagnosed with MS back in 1983.Recently I came across ccsviclinic.ca. They are screening in Fargo, ND. Called (404)461-9560 and spoke to Nurse Lisa. Their Liberation Package includes pre-op video consultation with their doctors, flight costs, visas, accommodation within their hospital premises. The treatment includes stent, medications, reports & post-op followup for next 6 mths. Email:apply@ccsviclinic.ca. Getting liberated mid-November. Thankful to CCSVI Clinic for making this happen!

By: Deb Jonaitis Clar

Deb Jonaitis Clar — Sun, 26 Sep 2010 00:26:45 +0000

Hi SammyJo, I just discovered your blog when I was searching in Google for “no flow in left jugular”. So glad you got treatment with Dr. Dake before he was shut down. I only discovered all this CCSVI stuff in June 2010, as I was recovering from back surgery. I have had MS for 33 years. In Aug. 2010 I flew to Hubbard, had the fMRI/MRV tests & then 3 angios done a couple weeks ago. I was told my left jugular is like a rat’s nest with No Flow & my azygous has a blockage from stenosis. Continued Good Luck to you, see you on Facebook.

By: manoj

manoj — Tue, 17 Aug 2010 15:46:11 +0000

I was liberated on last wk of Feb, my right IJV was stented (60 * 10mm) just below the ear, for last two weeks I’m having weakness, stiffness in right hand from shoulder to palm.. Not sure what is causing this ?? is this be MS or due to stent, Anyone have any idea, pls advise.. (One of my MS friend mentioned that it co…uld be… due to acc nerve getting affected by size and location of stent).

By: Catharina Cyr

Catharina Cyr — Fri, 09 Apr 2010 19:48:09 +0000

Hi Sammyjo,Joan referred me to you.Im going to India MID MAY for the procedure and I wanted to get off some drugs.I quit Rebif april 1 because honestly this drug was making everything worse,I started LDN the same day and for 4 days I had severe headaches,quit it because I found out that those 2 dont go well together.So,I was wondering how long do you have to be off REbif before I can start LDN,and can I be on the birth controll pill also with it.Thanks
Catharina