Archive for April, 2010

Update: 5 months post CCSVI procedure

This is a short post to let everyone know I am doing well. Since January, I’ve been thinking I must be at the end of the shoulder pain, but it just kept lingering. Now for sure now I know it is almost over, because I’ve been doing windmills with my right arm for the last 5 days! My left shoulder still hurts, but it is close to mended too. Wednesday the pain was minimal, then Thursday afternoon my spasticity lifted and I felt so good I burst into 20 minutes of exercise. OK, it is barely exercise, just swaying to challenge my balance, calf raises, side stepping, but you have to somewhere. And I could walk without leaning on walls. It felt so great to be moving freely, the suddenness of the change was a surprise.

My physical therapist had mentioned the constant pain could release prostaglandins that might irritate the MS syndrome; after this improvement following a no-pain day, I anticipate faster MS improvements in the future. Of course Friday I leaned on my left arm too hard and activated the nerve pain again, grrrrr! Was more careful through the weekend, but energy level remained up, and Sunday Doug brought some boxes out of storage and I spent 4 hours sorting through treasures I had not seen in years. That was a big project I could not have done a week ago.

Many CCSVI events and news items occurred during March, I just put a few of the major ones in a box on my main page. It is getting beyond my ability to keep up with all the news, patient activism, and locations starting trials, scans or treatment. I was hoping for this – means the world-wide explosion of patient action is working. So more MS people can get tested and Liberated if they have blocked veins.