Comments on: Baseline Status & Tracking Log Since CCSVI Procedure http://healingpowernow.com/blog/2009/12/status-update-120609-5-weeks-post-procedure/ Is CCSVI (jugular stenosis) the cause of Multiple Sclerosis? Tue, 17 Jan 2012 01:34:16 -0500 http://wordpress.org/?v=2.8.6 hourly 1 By: sammyjo http://healingpowernow.com/blog/2009/12/status-update-120609-5-weeks-post-procedure/comment-page-1/#comment-1406 sammyjo Fri, 03 Dec 2010 04:51:09 +0000 http://healingpowernow.com/blog/?p=7#comment-1406 Jessica, My heart goes out to you, this is a terrible tragedy that happened to your brother. Thank you for continuing the fight for others to get safe treatment in their own country. Jessica,
My heart goes out to you, this is a terrible tragedy that happened to your brother. Thank you for continuing the fight for others to get safe treatment in their own country.

]]> By: jessica forester http://healingpowernow.com/blog/2009/12/status-update-120609-5-weeks-post-procedure/comment-page-1/#comment-1405 jessica forester Thu, 02 Dec 2010 21:09:11 +0000 http://healingpowernow.com/blog/?p=7#comment-1405 The CCSVI Liberation Treatment could be the cure but fact remains that the rate of re-occlusion is stuck at 50% and MS patients being treated in the European and Asian countries end up suffering as they did, 3 months ago. While Big Pharmaceutical Corporations and governments in the US and Canada are coming up with new ideas to stop any advancements to the CCSVI theory (Like the superbugs, etc.), millions continue to travel to countries like India and Poland to get this simple procedure and no valuable data is recorded to support the CCSVI theory. Unless we get our position strong enough to support the CCSVI Theory, we will never be able to beat the Pharma Corporations or start the treatment here and many will keep suffering and dying even after having the procedure done. I lost my elder brother last month because of a blood clot in his stent. He got liberated 5 months ago in Poland. We need to prove to the government that this works. Non-profit organizations like the CCSVI Clinic http://www.ccsviclinic.ca/ are tirelessly working to develop safer protocols with teams of world renowned surgeons even though they are feeling the negative pressure from you know who. This Atlanta based Organization has started Clinical Trials for CCSVI and we need to support these groups because they are our only hope to fight for the truth. Without the valuable data that they are collecting offshore, the procedures will not be allowed here, in our own countries. The CCSVI Liberation Treatment could be the cure but fact remains that the rate of re-occlusion is stuck at 50% and MS patients being treated in the European and Asian countries end up suffering as they did, 3 months ago. While Big Pharmaceutical Corporations and governments in the US and Canada are coming up with new ideas to stop any advancements to the CCSVI theory (Like the superbugs, etc.), millions continue to travel to countries like India and Poland to get this simple procedure and no valuable data is recorded to support the CCSVI theory. Unless we get our position strong enough to support the CCSVI Theory, we will never be able to beat the Pharma Corporations or start the treatment here and many will keep suffering and dying even after having the procedure done. I lost my elder brother last month because of a blood clot in his stent. He got liberated 5 months ago in Poland. We need to prove to the government that this works. Non-profit organizations like the CCSVI Clinic http://www.ccsviclinic.ca/ are tirelessly working to develop safer protocols with teams of world renowned surgeons even though they are feeling the negative pressure from you know who. This Atlanta based Organization has started Clinical Trials for CCSVI and we need to support these groups because they are our only hope to fight for the truth. Without the valuable data that they are collecting offshore, the procedures will not be allowed here, in our own countries.

]]> By: Derekdadey http://healingpowernow.com/blog/2009/12/status-update-120609-5-weeks-post-procedure/comment-page-1/#comment-1175 Derekdadey Fri, 01 Oct 2010 02:44:48 +0000 http://healingpowernow.com/blog/?p=7#comment-1175 I’m curious, in how many independent experiments does the null hypothesis have to be supported before we can reject the original hypothesis? I am (because I am not qualified or knowledgeable)not suggesting two studies reach this threshold for CCSVI. There must be a point at which we can safely say the hypothesized relationship has failed across enough varied paradigms to be deemed falsified. With medicine the stakes are high. One would hate to be premature and miss a potential diagnostic or treatment regimen. However, the funding is not unlimited, nor are the number of research hours. Both the sufferers/fundraisers and the researchers should have input; however, the question is, to what degree. Interested in feedback. Thanks. Get screened in the US. Check out http://www.ccsviclinic.ca/ for more information. Call (404)461-9560 to schedule your pre- and post procedure screening today in Fargo, ND. You can also email them at apply@ccsviclinic.ca. I’m curious, in how many independent experiments does the null hypothesis have to be supported before we can reject the original hypothesis? I am (because I am not qualified or knowledgeable)not suggesting two studies reach this threshold for CCSVI. There must be a point at which we can safely say the hypothesized relationship has failed across enough varied paradigms to be deemed falsified.
With medicine the stakes are high. One would hate to be premature and miss a potential diagnostic or treatment regimen. However, the funding is not unlimited, nor are the number of research hours.
Both the sufferers/fundraisers and the researchers should have input; however, the question is, to what degree.
Interested in feedback. Thanks. Get screened in the US. Check out http://www.ccsviclinic.ca/ for more information. Call (404)461-9560 to schedule your pre- and post procedure screening today in Fargo, ND. You can also email them at apply@ccsviclinic.ca.

]]> By: sammyjo http://healingpowernow.com/blog/2009/12/status-update-120609-5-weeks-post-procedure/comment-page-1/#comment-348 sammyjo Sun, 04 Apr 2010 17:33:49 +0000 http://healingpowernow.com/blog/?p=7#comment-348 More doctors are doing CCSVI procedures in the US. For the colitis, IBS, Chron's there is definately help, Low Dsse Naltrexone, see http://LDNers.org More doctors are doing CCSVI procedures in the US. For the colitis, IBS, Chron’s there is definately help, Low Dsse Naltrexone, see http://LDNers.org

]]> By: colleen hansen http://healingpowernow.com/blog/2009/12/status-update-120609-5-weeks-post-procedure/comment-page-1/#comment-340 colleen hansen Fri, 02 Apr 2010 01:27:44 +0000 http://healingpowernow.com/blog/?p=7#comment-340 Sammy Jo, This is so courageous to be honest with people about the results/challenges of the treatment. How does a person line up a doctor for the Liberation treatment? We live in Montana and have heard Washington is doing treatment. Do you know where this is? My son is turning 30 on April 17 and is progressively having more difficulty walking---even wall walking is becoming terribly difficult. Is there anything that helps with chronic colitis? That is an additonal challenge. Thank you for being so kind to share your experiences---good/bad---it is helpful! Colleen Hansen Sammy Jo,

This is so courageous to be honest with people about the results/challenges of the treatment. How does a person line up a doctor for the Liberation treatment? We live in Montana and have heard Washington is doing treatment. Do you know where this is?

My son is turning 30 on April 17 and is progressively having more difficulty walking—even wall walking is becoming terribly difficult. Is there anything that helps with chronic colitis? That is an additonal challenge.

Thank you for being so kind to share your experiences—good/bad—it is helpful!

Colleen Hansen

]]> By: Arlene http://healingpowernow.com/blog/2009/12/status-update-120609-5-weeks-post-procedure/comment-page-1/#comment-336 Arlene Mon, 29 Mar 2010 23:59:47 +0000 http://healingpowernow.com/blog/?p=7#comment-336 Hello! I've noticed that you haven't updated your site in over a month. Are you ok????? OR simply too busy to post? Hello!

I’ve noticed that you haven’t updated your site in over a month. Are you ok????? OR simply too busy to post?

]]> By: sammyjo http://healingpowernow.com/blog/2009/12/status-update-120609-5-weeks-post-procedure/comment-page-1/#comment-287 sammyjo Tue, 23 Feb 2010 19:10:52 +0000 http://healingpowernow.com/blog/?p=7#comment-287 Cynthia, I've tried to detail the risks as well as benefits that I have seen with my CCSVI treatment. Just prepare for the worst, like being bed ridden for weeks or months due to shoulder pain. But hope for the best, maybe you will only need angioplasty and not stents, which presents less risk of damage to the nerves in the neck. And congratulations for having the courgage to make your appointment, we are still early adopters, because intervention trials have not occured to confirm Dr. Zamboni's intervention trial. Cynthia, I’ve tried to detail the risks as well as benefits that I have seen with my CCSVI treatment. Just prepare for the worst, like being bed ridden for weeks or months due to shoulder pain. But hope for the best, maybe you will only need angioplasty and not stents, which presents less risk of damage to the nerves in the neck. And congratulations for having the courgage to make your appointment, we are still early adopters, because intervention trials have not occured to confirm Dr. Zamboni’s intervention trial.

]]> By: cynthia ashworth http://healingpowernow.com/blog/2009/12/status-update-120609-5-weeks-post-procedure/comment-page-1/#comment-285 cynthia ashworth Tue, 23 Feb 2010 15:43:42 +0000 http://healingpowernow.com/blog/?p=7#comment-285 Dear SammyJo: My progreesive MS is so much worse now that I cannot leave my recliner. I have an appointment to have the proceedure in Brooklyn, N.Y. in June, but I'm concerned about possible dangers of the surgery. Any information you could pass on I'd sure appreciate it. It's so exciting that your experience such forward progress. I hope you regain the quality of life you want. Peace, Cynthia Dear SammyJo: My progreesive MS is so much worse now that I cannot leave my recliner. I have an appointment to have the proceedure in Brooklyn, N.Y. in June, but I’m concerned about possible dangers of the surgery. Any information you could pass on I’d sure appreciate it. It’s so exciting that your experience such forward progress. I hope you regain the quality of life you want. Peace, Cynthia

]]> By: Selma http://healingpowernow.com/blog/2009/12/status-update-120609-5-weeks-post-procedure/comment-page-1/#comment-282 Selma Sun, 21 Feb 2010 23:07:50 +0000 http://healingpowernow.com/blog/?p=7#comment-282 Sammy Jo- You are an inspiration to all of us. I admire your courage, determination, and relentless spirit. Thank you for all of your tireless efforts and for sharing your story with us. Sammy Jo- You are an inspiration to all of us. I admire your courage, determination, and relentless spirit. Thank you for all of your tireless efforts and for sharing your story with us.

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